Personal Stories

Statistically, over 50 million Americans are affected by brain and nervous system disorders. Most, if not all of you, have a story of a loved one that has suffered with a neurological issue. It is important to share these stories in order to give a voice to the incredible passion that drives our Foundation. We plan to tell these stories by featuring a personal story in each of our upcoming newsletters.Click on the links below to read personal stories and learn more about the Passion for the Foundation.
To inquire about how to share a story about your passion for the BRF, please email us at 

Matt Rahn, BRF Donor, shares his story about surviving brain surgery and his family’s struggles with Alzheimer’s disease. Read More.

Kelly Vandermel, BRF Donor, shares her story about losing her husband to a brain aneurysm and her daughters’ plan to honor their father’s memory. Read More.

Bill Fay, (1917-2015) BRF Founding Member and Chairman Emeritus, tells a compelling story about his daughter Lisa and her triumph over childhood epilepsy. Read More.

Rob Johnson, Former BRF Trustee, shares his passion for the Brain Research Foundation, and tells us how he came to be involved. Read More.

Diana Healy, BRF Donor, shares her story about her husband’s battle with ALS, and why supporting the BRF is so important. Read More.

Cynthia Macfarland, BRF Donor, shares her story about her father’s struggle with dementia, and what we can do today to support research, and our loved ones. Read More.

Gwill Newman, (1932-2010) BRF Trustee, told her honest and consuming story about her son Fred and his struggles with schizophrenia, and the role it played in her family’s life. Included here is an excerpt, but you can read the entire story by purchasing Gwill’s book, My Son’s Name Was Fred. Read More.

Barbara and Marc Posner, BRF Donors, tell us about Barbara’s father’s diagnosis of Creutzfeldt-Jakob disease (CJD), a disease so rare that it strikes one in a million. They discuss the importance of funding research, and how they donate to BRF to honor Barbara’s father. Read More.

Mary Smart, BRF Honorary Trustee, tells friends of the Foundation why it is so important to continue giving to support cutting-edge neuroscience research. Read More.

Graham Bayly, BRF Associate Board Member, gives insight on how he uses his ADHD as an advantage to get ahead in his competitive work environment. Read More.

Andrew Swigart, BRF Associate Board Member, shares his touching story about how neurological disorders struck two of his immediate family members and changed his life forever. Read More.

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